Waiting on test results - lymphoma

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Waiting on test results - lymphoma

Postby TraceyG » Fri Aug 09, 2013 11:43 am

I am sick of feeling sick and waiting on test results! Specialist says there is a strong possibility that I have lymphoma but of course, he can't say for certain, or what type of lymphoma or what stage, and therefore what treatment, until we get test results back. In the meantime, a short ride on the bike (when weather permits), is enough to leave me feeling wiped out for two days. Add that to the frustration of being on holidays and barely being able to ride....I'm pretty close to having myself a little misery party!

Hopefully I'll get some answers next Tuesday but the specialist has already indicated that the results we are waiting on may be inconclusive and then it will be a full biopsy. I guess that will keep me off the bike for a bit longer again. :(

Lymphoma is the most treatable of cancers, if that is what I have, but having lost four friends to cancer in the last 12 months, it's a little challenging to maintain a positive outlook all the time.
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by BNA » Fri Aug 09, 2013 12:26 pm

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Re: Waiting on test results - lymphoma

Postby Summernight » Fri Aug 09, 2013 12:26 pm

Hang in there, TraceyG. I hope the results come back negative for lymphoma.
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Re: Waiting on test results - lymphoma

Postby gabrielle260 » Fri Aug 09, 2013 12:33 pm

Good luck - hang in there!
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Re: Waiting on test results - lymphoma

Postby InTheWoods » Fri Aug 09, 2013 12:36 pm

Oh no, sorry to hear that :( I hope you get the news you want next week.
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Re: Waiting on test results - lymphoma

Postby moosterbounce » Fri Aug 09, 2013 12:37 pm

Hope the results give you some answers and a path to tread down for recovery. We are all behind you.
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Re: Waiting on test results - lymphoma

Postby TraceyG » Fri Aug 09, 2013 4:47 pm

Thanks folks. I'll try to keep my chin up and have positive thoughts, too.
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Re: Waiting on test results - lymphoma

Postby toolonglegs » Fri Aug 09, 2013 5:22 pm

Hopefully the results are all clear Tracey. Sending you all my positive thoughts!.
My niece has t cell lymphoblastic lymphoma at the moment ... she was 7 when diagnosed, apparently it was very aggressive. They only spotted it as her body was slightly darker above the heart ( where it had clamped itself around the main artery )... after a very scary first month they got it to break up. She is 8 months into treatment and has just started back at school this week :D :D :D . She still has 18 months of chemo to go but the hardest part is now over.
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Re: Waiting on test results - lymphoma

Postby Mulger bill » Fri Aug 09, 2013 6:12 pm

Crap, a Dyson on steroids doesn't suck that hard :(
Take all the strength you need from us Tracey, if it means a week off the bike for me it'll be worth it.

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Re: Waiting on test results - lymphoma

Postby thecaptn » Fri Aug 09, 2013 8:50 pm

Fingers crossed for you :(
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Re: Waiting on test results - lymphoma

Postby foo on patrol » Sat Aug 10, 2013 9:18 am

Thoughts with you here Tracey also. :(

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Re: Waiting on test results - lymphoma

Postby gorilla monsoon » Mon Aug 12, 2013 8:22 pm

Stay positive, Tracey. Everyone is here for you.
Some days you are a big, strutting rooster, some days you are a bit chicken and some days you are just a complete cocque. Roger Ramjet: 2009 Giant CRX3 Spockette: 2009 Trek FX 7.3 (WSD, property of Mrs Monsoon) Lady Penelope: 2011 Avanti Cadent 1.0 TdF
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Re: Waiting on test results - lymphoma

Postby Sturgis » Tue Aug 13, 2013 7:15 am

Hi Tracey,
Thinking of you, hope it turns out ok.
Keep us posted with the results.
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Re: Waiting on test results - lymphoma

Postby marty_one » Tue Aug 13, 2013 8:33 am

Hi Tracey,

Stay positive, I hope that everything works out for you. I just wish that cancer was not as common as it is these days, having lost my dad to cancer in June.
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Re: Waiting on test results - lymphoma

Postby TraceyG » Tue Aug 13, 2013 1:28 pm

80% certain is NOT lymphoma. Yay. Still to have node removed for further biopsy to confirm and also try and find out cause of other symptoms. Best possible news without getting 100% negative. Thank you to everyone for your support and for sharing your experiences.
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Re: Waiting on test results - lymphoma

Postby Summernight » Tue Aug 13, 2013 2:23 pm

TraceyG wrote:80% certain is NOT lymphoma. Yay. Still to have node removed for further biopsy to confirm and also try and find out cause of other symptoms. Best possible news without getting 100% negative. Thank you to everyone for your support and for sharing your experiences.


Funny you should say that. We had a sick horse (yes, I know a horse) who had been losing weight for months but feeding more hadn't reversed the decline. He had symptoms that the vet said could possibly be lymphoma (which we were extremely upset about). A battery of tests were run and then further tests and more tests which ended up coming back negative for lymphoma. It turned out to be chronic peritonitis (unknown cause although we suspect it was the caterpillars. Yup, that's right, caterpillars) which was treated by months and months of twice-daily antibiotics.

Maybe you have peritonitis caused by accidentally ingesting a particular species of caterpillar? :P

(Hope the doctors work out what you have soon and that it is easily treatable)
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Re: Waiting on test results - lymphoma

Postby marty_one » Tue Aug 13, 2013 3:45 pm

TraceyG wrote:80% certain is NOT lymphoma. Yay. Still to have node removed for further biopsy to confirm and also try and find out cause of other symptoms. Best possible news without getting 100% negative. Thank you to everyone for your support and for sharing your experiences.


That is fantastic news, I just hope that the biopsy removes the 20% chance.
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Re: Waiting on test results - lymphoma

Postby Mulger bill » Tue Aug 13, 2013 4:19 pm

marty_one wrote:
TraceyG wrote:80% certain is NOT lymphoma. Yay. Still to have node removed for further biopsy to confirm and also try and find out cause of other symptoms. Best possible news without getting 100% negative. Thank you to everyone for your support and for sharing your experiences.


That is fantastic news, I just hope that the biopsy removes the 20% chance.

+ more than Deep Thought can count :D
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Re: Waiting on test results - lymphoma

Postby Lizzy » Thu Aug 15, 2013 4:59 pm

TraceyG wrote:80% certain is NOT lymphoma. Yay. Still to have node removed for further biopsy to confirm and also try and find out cause of other symptoms. Best possible news without getting 100% negative. Thank you to everyone for your support and for sharing your experiences.


Glad to hear it. Reading this thread gave me shivers, I went through that same waiting game 7-8 years ago (negative, and my symptoms apart from nodes going up turned out to be thyroid disease).

I'm glad its looking a bit less scary but be extra kind to yourself :)
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Re: Waiting on test results - lymphoma

Postby gabrielle260 » Thu Aug 15, 2013 7:25 pm

That's good news, Tracey!
Best wishes,
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Re: Waiting on test results - lymphoma

Postby TraceyG » Thu Aug 22, 2013 6:01 pm

Biopsy done. Just home from the hospital, now the 10 day wait for results. I was lucky enough that there was a cancellation and I got into hospital very quickly.
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Re: Waiting on test results - lymphoma

Postby trailgumby » Thu Aug 22, 2013 8:43 pm

Thoughts and prayers coming your way. :)
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Re: Waiting on test results - lymphoma

Postby Mulger bill » Thu Aug 22, 2013 8:51 pm

Everything possible is crossed for you Tracey.

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Re: Waiting on test results - lymphoma

Postby wombatK » Thu Aug 22, 2013 9:34 pm

Hope you get the best results from the biopsy. Until they come through, try to live like it will all be OK.

Even if the diagnosis was more grim, staying positive and living like it will all work out OK is the best
approach. This is much easier to say than to do, of course.

But you're probably starting way ahead of the statistically average patient the docs see, and so can
justify expecting the best results. Just focus on all the positives you've got going for you. And all
the good wishes we can send.
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Re: Waiting on test results - lymphoma

Postby jules21 » Tue Aug 27, 2013 3:29 pm

good luck Tracy. fingers crossed..
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Re: Waiting on test results - lymphoma

Postby TraceyG » Mon Sep 02, 2013 3:07 pm

Best possible news from biopsy results - 100% cleared of lymphoma or any type of cancer.
Plus cleared to get back on the bike! OMGosh - I don't know if my legs will know what has hit them tomorrow morning. I am going to have to ease back in and build up after having ridden a massive 20km in the last six weeks!

Unfortunately we still don't know the cause of my symptoms but investigations are ongoing. At least the worst case scenario is out of the picture.
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